Parents across Fiji can connect, share resources, and find guidance through a dedicated online network.
Sonia Shainaaz has turned her personal journey caring for her 10-year-old daughter, Aarna Sen, who lives with severe Cerebral Palsy, into a lifeline for other families.
She created an online community connecting 10 parents of children with disabilities across Suva, Labasa, and Kadavu, offering a space to share advice, resources, and emotional support.
“Parents can feel isolated, but when you connect with others who understand, it makes a huge difference,” Ms Shainaaz said.
The network allows families to exchange practical tips on nutrition, therapies, and daily routines, as well as donate essential items such as diapers and feeding equipment.
“We support each other in small but meaningful ways.”
She stressed the importance of structured routines, specialised diets, and adaptive tools to improve children’s health and comfort. At the same time, she encourages caregivers to take time for themselves.
“Even a short walk, a hobby, or a moment of self-care can help parents manage the pressures of full-time caregiving.”
Ms Shainaaz also believes the wider community has a role to play. Simple gestures, such as helping with a wheelchair or donating supplies, can ease the burden on families.
She hopes to see dedicated daycare and therapy centres developed for children with severe disabilities, where they can learn, play, and interact safely.
Beyond her caregiving responsibilities, Ms Shainaaz is pursuing studies in social work and plans to register an NGO to provide structured support nationwide.
Her advice to parents is simple: focus on what your child can do, seek help early, and build connections with others on a similar journey.
“Children with disabilities feel joy, pain, and love just like any other child,” she said.
“With support from family, the community, and peers, both children and parents can thrive together.”
